Team Brooklyn is THRILLED to join GP2C in our fourth year of Dress Up 2 Cure!!
We have again set our goal at $10,000 which I know is a HUGE amount. Each year I hesitate to set this large of a goal and each year my friends and family (and heck, even total strangers) ALWAYS come through for us!
Friday, February 25, 2011
DU2C 2011 - Team Brooklyn!!
Posted by Brooklyn at 6:30 AM 0 comments
Thursday, February 24, 2011
Our EEG Experience
Monday morning we were at the hospital BRIGHT and EARLY for Brooklyn's 24 hour video EEG. Of course with all of the snow and ice our typical 30 minute trip was an hour but we made it safely!
Brooklyn has been having some "vacant" spells - I am pretty sure that it is just "a Rett thing" but we want to be sure. She has had some at school that I think might actually be some breath holding episodes but of course when a child is not breathing and the lips turn blue it tends to worry people! Can't say I blame them!
So, now the EEG is done and so we wait.....will let you know when we get the results. Until then here are some pics of our experience.
Here we had 3 more hours to go -
The CRAZY hair after everything was off!
After 30 hours in the hospital she was OVER IT!
We survived the experience and pray that our results show NO seizure activity. Rett Syndrome tortures her poor little body enough as it is we really hate to add this to the list too. Thank you all for your encouragement through this process, you all are great!
Posted by Brooklyn at 7:15 AM 3 comments
Wednesday, February 23, 2011
Trip to New York!
These pictures/video include three SUPER inspiring women that I am so very thankful and proud to call my friends. Terri, Ingrid, & Steph - thanks for the AMAZING weekend!
Rett Syndrome - with women like this fighting you.....you do not stand a chance!!!
(Thanks to Ingrid for putting this great video together - YOU ROCK!)
Posted by Brooklyn at 11:19 AM 1 comments
Friday, February 18, 2011
post # 1001
Posted by Kelly at 9:02 AM 5 comments
Tuesday, February 15, 2011
Dress Up 2 Cure 2011
I am looking for 11 schools nationwide to be a part of Team Brooklyn in this year's 2011 Dress Up 2 Cure Campaign! Are you a teacher, principal, or even a mom that is willing to ask your child's school to participate? Leave me comment and I will get back in touch with you! It is a SUPER fun day - so come on.....help me get silly, spread hope, and cure Rett Syndrome!
To read a little more about how your school can get involved: http://www.dressup2cure.org/schools-2011.html
(we are looking for schools to host a day throughout April!)
Posted by Kelly at 11:20 AM 0 comments
Friday, February 11, 2011
Brooklyn was PUMPED for her Valentine's Party in Kindergarten today - she even woke up EARLY! Which is NOT like her on a school day! She used her stamp to sign all the valentines and took in Miss Weber a box of Hershey chocolates:)
Posted by Kelly at 11:08 AM 1 comments
Thursday, February 10, 2011
Homemade Valentine's Ornaments
Grammy had the GREAT idea to make dough ornaments for Brooklyn's tree. Brooklyn was PSYCHED for this project! She helped with every step of the process!
Posted by Kelly at 10:38 AM 8 comments
Wednesday, February 2, 2011
I'll Fly
Canadian gospel singer, Dana Marie, has a special little friend at church. Her name is Anna and she is just three years old. Anna cannot run, skip, climb, or even speak. She is "trapped" inside a body that will not work. She is trapped by Rett Syndrome, just like my Brooklyn.
Posted by Brooklyn at 10:44 AM 0 comments
Tuesday, February 1, 2011
Writing Workshop in Kindergarten
Ms. Weber has started Writer's Workshop in her kindergarten class. I have to admit....I was a bit nervous to see how Brooklyn would be able to participate. Well, again leave it to Ms. Weber to adapt! She asked me for a list of possible topics (and gathered some of her own from this blog.) She then gave Brooklyn choices of what she wanted to write about (via eye gaze.) She chose horses.
She then cut out words and statements that could be read to Brooklyn for her to create her sentances. She also provided pictures for Brooklyn to pick from to use in her book. Brooklyn's aide helped her with her choices and we ended up with this FANTASTIC book!
Posted by Kelly at 12:24 PM 7 comments