Monday morning we were at the hospital BRIGHT and EARLY for Brooklyn's 24 hour video EEG. Of course with all of the snow and ice our typical 30 minute trip was an hour but we made it safely!
Brooklyn has been having some "vacant" spells - I am pretty sure that it is just "a Rett thing" but we want to be sure. She has had some at school that I think might actually be some breath holding episodes but of course when a child is not breathing and the lips turn blue it tends to worry people! Can't say I blame them!
So, now the EEG is done and so we wait.....will let you know when we get the results. Until then here are some pics of our experience.
Here we had 3 more hours to go -
The CRAZY hair after everything was off!
After 30 hours in the hospital she was OVER IT!
We survived the experience and pray that our results show NO seizure activity. Rett Syndrome tortures her poor little body enough as it is we really hate to add this to the list too. Thank you all for your encouragement through this process, you all are great!