Saturday, May 24, 2008

Rett Syndrome Conference....Chicago

Today I had lunch with Brooke's mom, Caitlyn' mom, and Edda's mom (otherwise know as Samantha, Rebecca, and Doris.) We are all here in Chicago for the Rett Syndrome Conference. I feel like I have know them forever. These three gals are three of the first moms that I connected with (via the blogging world.) It is because of these three ladies I was able to take it one day at a time when we first received our diagnosis. I check in on their girls daily (even when they do not update often....no pressure Samantha!) and they check in on Brooklyn. Hugging them was like hugging family, to meet them face to face is so wonderful! I have not managed to snap a picture of Erin yet but I got the chance to meet Riley and she is just as cute in person as she is on the blog! I loved that she let me scoop her up for a great big hug. It did make me wish that Brooklyn was here but I know I am able to learn tons and sleep more being here without her. (AND BOY AM I LEARNING!!) Thank you Riley for giving me my hug for the day!!!
I am having a great time and meeting so many amazing people here. It is so great to be around people that know EXACTLY what I am going through, thinking, feeling, wishing, etc. I am heading off to our evening social so I better run........

12 comments:

Jessica said...

Kelly, I am just soooooo thrilled for you!! It must be so wonderful to be able to share experiences with other moms in similar situations and to meet women you have been chatting with for so long! I am so happy to hear that you are having such a good experience!!

Jake said...

Kelly,
I am Charlie's cousin, Joy. (I am posting under my husband, Jake). I have met you once at your wedding! Charlie's mom (my Aunt Dana) told me all about Brooklyn. I have just found your blog, and I just wanted you to know how much it has touched me. I am so inspired by Brooklyn!! She is such an angel, truly!!

I am so proud of you and Charlie!! I want you to know I am committed to praying for all of you each day. In addition, I work at Mayo Clinic here in Rochester, MN. I have decided to make sure that every co-worker I have (a large group!) knows about Rett Syndrome!!! I would love to support you all in any way I can!!

Thank you for sharing your story and your life...I am so thankful for your opportunity to be in Chicago and connect with others who understand!!

Joy (Matthews) Allen

Avery said...

I so wish I was there! Im sad that Im missing all the fun. There is always next year. :(

Im going to email Dr. Percy's nurse, Jane, and ask if it was Avery's picture on the slide show. Was it a picture of the 2 of them together?

Enjoy yourself! You deserve it!

Avery said...

BTW, Kelly, you are so stinkin' cute!

Girl Power 2 Cure said...

Hi guys! Glad you are enjoying the conference! Say hello to Samantha and Doris for me!!!

--Ingrid

Sears Kids said...

Hi, Kelly! The girls and I enjoyed seeing Brooklyn on Friday while Janet was watching her. We've really missed her in our neighborhood! She was having a great day and she gave us lots of smiles!!:)
Jennifer

Anonymous said...

Kelly,
I am so glad you have learned alot and finally met some of your true angels who have helped you like no other could they truly understand what you have gone through and will to come. Thanks so much for letting me watch Brooklyn Friday so you and your mom could go. I had a blast and so did Brooklyn she was all smiles all day.I hope you got some much needed sleep too! Janet

Karlie's Momma said...

I'm so glad that i had the opportunity to meet you and hear more about Brooklyn! You're such an amazing person and a terrific mommy to a precious little girl! This page that you have created for her is awesome and i promise to get started on Karlie's soon! I look forward to keeping in touch with you and i hope to have the chance to see you again soon so i can meet sweet little Brooklyn! I hope you had a great trip home, as i know you were missing her terribly! Sending big hugs and kisses your way! Much love, Kim

Samantha said...

Look how cute we are - hehe! It really was wonderful to meet everyone (or see them again) and I vow to post on our poor neglected blog by the weekend.

Anonymous said...

Kelly,

I'm so glad you got to go to the conference. Isn't it amazing? There is so much great information and so many amazing people to connect with! I'm sure you have made many new friends.

Love,
Margie and George

Grammy said...

Kelly.....thanks so much for the opportunity to attend the conference with you. I learned so much and am really excited to try all the new ideas I learned! Also to those of you reading this who attended the conference.....you guys rock!!!! I loved meeting all of you and look forward to seeing you again.

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