I wanted to update you all on Brooklyn and her seizures - or lack of seizures I should say! We have been debating (for a long time now) whether Brooklyn was having seizures or if they were just "Rett Spells." Our local neurologist was CERTAIN they were seizures because the the eeg reading and she saw the "absence seizure" in her office. However, we have since met with two rett specialists both of whom believe Brooklyn was probably not having seizures. Most Rett Girls will have an abnormal eeg and to most neurologists (who are not familiar with Rett) will determine they are and medicate, which is why Brooklyn ended up on Keppra. It was decided that the only way to be sure was to ween her off of the Keppra and see what happens. IF the "seizures/vaccant spells" return we will set up a 24 hour video eeg to be absolutely sure they are indeed seizures and need medication. Our hopes of course is that she will be seizure/medication free! Over the past couple months we have been slowly weening her off of her Keppra. Things have been pretty good. Today is day two of NO seizure meds!!! I have not seen any seizures/vacant spells. She does seem a bit shaky at times but our Rett girls can be like that. I hope she continues to do well off the medication, your prayers are greatly appreciated!!! I will let you know how it goes but we are definitely off to a good start!