Dr. Escobar (our neurodevelopment & geneticist specialist) was not happy that the neurologist has not gotten Brooklyn in to see him. She is having increased seizure activity that needs to be figured out and under control with medicine. He personally got on the phone and made calls for us to get us into a pediatric neurologist. HE DID! We have an appointment TODAY with Dr. Khan in Fort Wayne. He did warn us that she might need a 24 hour EEG which would require an overnight stay in the hospital but that would be the best way to determine all seizure activity. They video her too while this is going on. They warned us that it is a LONG 24 hours but worth it. We have had an EEG done and the neurologist might have enough information from that. We will not know until our meeting with her this afternoon. Thanks for your continued prayers!
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4 comments:
Thank you so much for keeping us all updated with your blog. George and I look at it each morning to see what is going on with our beautiful granddaughter. We love all the pictures.
Good luck with the appointment today. Please let us know the results.
Thanks for the update...I check in each day to see if you have any. Please let me know how it goes. As always, we are thinking of you guys.
Good luck this afternoon. Please let us know how everything goes! We are thinking of all 3 of you!!
this is my first attempt using a blog
I am sure I have much to learn...
it will be a good way to keep up-to-date
~Aunt Cathy
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