Actually, the results have been in for about a week but I just have not blogged them, SO SORRY! Yes, we had our follow up appointment with Brooklyn's neurologist and ALL OF THE EPISODES came back clear - none of them were seizure activity! I was so happy that we caught both her "vacant spells" as well as her tremors on film during the 24 hour eeg.
What a huge blessing. Of course the spells ARE happening and when she is at school they are completely freaking out her teachers and aides. We have an appointment to see a pulmonologist in a few weeks - we want to check her O2 and CO2 levels and also have him help us write a "plan" for school. We have people wanting to call 911 and/or give her CPR which neither at this point are necessary at all but I DO appreciate the concern that he school has for her and of course realize they need a plan of care to cover their "behinds" as well.
SO....still more investigating to be done for now but we are SEIZURE FREE and I could not be more excited about that!!!
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4 comments:
What a blessing! I hope that the pulmonologist will give you a better idea what's going on.
thank goodness! glad brookie bean gets to be spared the loveliness that is seizure drugs...
So glad to hear this, CLaire is having similar problems, we did go to the er, she sat there and laughed at them, once the episodes stopped.
we were so reassured after our last sleep study, too! I am so glad to hear that there is good news for your sweetie~
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