Monday, February 22, 2010

I have been thinking a lot the past few days about the tragedy that occurred in AZ last week. For those of you who are unaware the "Rett Community" was devastated by the news of a five year old little girl with Rett Syndrome that was withheld her medicine and starved to death by her Uncle who was her "guardian" at the time. Guardian.....that term sure does not fit that horrible man. I have thought of many names for this gentleman over the past few days and guardian and care provider were not on my list. I only have peace with this incident knowing that this precious angel is now in heaven with her true care provider. I pray she is dancing and playing with all the Rett Angels that have gone before her.
You know.....over the past few months I have had my share of pitty parties for myself.....I often ask why do my kids have to struggle? Brooklyn with Rett Syndrome and now Boston with Down Syndrome (heck - Charlie struggles at ton with his Behcet Syndrome and Anklosing Spondalitis) I ask "why" a lot and then something like this happens and a sweet innocent little girl suffers and dies and then I "get it".....God gave me these AMAZING kiddos so that I could love them. So that Charlie and I could be their care providers. Brooklyn and Boston will never miss their meds or starve. Don't get me wrong I am sure (like any kid) at some point in their lives they will not like us - all kids go through that in their teenage years, right??!! But I hope that one thing will always be for sure.....our kids are loved. I want my kids to know that they can always count on me to care for them.
Thank you God for giving me this opportunity to love......give me the strength to do job right.

7 comments:

Anonymous said...

Kelly, God knew exactly what he was doing giving Brooklyn and Boston to you. You are an amazing mom! Sometimes it does take a horrible tragedy for us to realize no matter how bad things seem in our life, there is always someone is a worse situation. God bless you and your family!
Kim

Erica said...

Well said Kelly, as usual! xxoo

Chiot's Run said...

So true - those kiddos are sure lucky to have great parents like you & charlie. They couldn't be any more loved or better cared for.

Gramma Myrna said...

I too was shocked and saddened by such a needless death and can only hope there wasn't much suffering on her part!

I have thought of you so much after I heard that Boston has Downs but I love to see your smile and happy face and know that even though I'm sure there are times when you don't feel like smiling and it's easy (and okay) to have a pity party now and then....I'm glad that you can put it all behind you and be thankful for what you DO have and keep smiling to help us ALL keep smiling!

Thinking of you and Charlie and your lovely family. Gramma Myrna (gramma to Nora with Rett)

Janet said...

Kelly, You are a extrordinary woman and mother and wife. You overcome such hurdles with such grace. I know life is tough but God is Good.

lsdockter said...

I, too, am so grateful that we were given Sara to love and care for. No one can stop all the hurt and hate in the world, but my Sara will know love and not suffer as long as I'm her Mom. I have been trying to keep my mind from wandering to the little girl from AZ- it just hurts too much. Someone might have given her a loving home if authorities had been protecting her like they are paid to. Kisses to the beautiful Brooke and handsome Boston!!

Marissa Depuy said...

You and Charlie are amazing parents to those adorable and lucky kiddos! God certainly knew what He was doing when He chose the two of you to be their parents. You're exactly right, He knew that you would provide the best possible care and unconditional love, regardless of the circumstances. As I close, I'm reminded of a saying that I always keep close in my mind: "God never promised us it would be easy, but He did promise us it would be worth it!" It certainly is and will be!
Marissa