Friday, January 15, 2010

Ingrid was on Parent's TV sharing the story of her daughter Sarah and their life with Rett Syndrome, she shares how Girl Power 2 Cure came to be! Thank you Ingrid for all of your continued hard work in your fight to raise awareness for all of our girls!!

1 comment:

Sarah said...

Hi! My name is Sarah ad I'm a long-time follower of your blog but a first-time commenter. I'm a college student who works with special needs kids. I also follow more than 200 blogs, and I'm sending a very special message to all the blogs I follow: YOU have the chance to be part of a miracle!

Chase Community Giving is awarding $1 million to 5 charities! The Gwendolyn Strong Foundation is working to find a cure for Spinal Muscular Atrophy - and they could use the money!

Fast Facts:
- SMA is the #1 genetic killer of infants under the age of 2
- 50% of those diagnosed will not live to see their 2nd birthday
- kids with SMA lose the ability to sit, stand, walk, talk, eat, swallow, and breathe
- 1 in 40 people is a carrier
- the National Institute of Health says that SMA is the #1 CURABLE disease if given research funding
- SMA is a "gateway" disease, and curing it could provide cures for many other diseases, including Parkinson's and Lou Gehrig's disease
- right now there is NO cure and NO treatment

Want to change that? Vote for the Gwendolyn Strong Foundation on the Chase Community Giving app on Facebook! You have five votes to tell the world that you want a CURE for SMA!

Tell your friends and blog contacts - let them know they could be part of a MIRACLE - be part of a CURE - and give kids a FUTURE!