Brooklyn came to visit me last night.....she was slightly dissapointed that this "TV" would not play Dora OR the Wiggles!
Saturday, September 12, 2009
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My name is Brooklyn. I am six years old and I have Rett Syndrome. My mommy works with a wonderful Rett Syndrome organization called Girl Power 2 Cure. Be sure to check it out www.girlpower2cure.org I hope you enjoy this blog...it is filled with stories and pictures of our family's life with Rett Syndrome.
Brooklyn came to visit me last night.....she was slightly dissapointed that this "TV" would not play Dora OR the Wiggles!
Posted by Kelly at 7:29 AM
4 comments:
I had a great time hanging out with you...mommy's bed is pretty cool right?!?!
First, can't believe you're wearing a Shenandoah Zeps shirt ... wait 'til friends in Caldwell see that :)
Secondly, Brookie had a great time and (obviously) was glad to see her Mommy AND was great when we took her out to dinner!
Finally, glad to hear you, Kristin and Shannon had an enjoyable overniter even if it was in the Hospital, especially Shannon making drive from Lexington ...she will really have to visit in ANGOLA the next time!!
Will probably see you (and the 'little man') later today ... I know Brookie is already waiting to get 'back on the road' and probably bringing more Wiggles Tapes!!! REST while you're there (I know you always tell me the same thing, but I mean it)!!!! LOVE, Dad
Oh dear! This is all a surprising development. He's better off on the outside if the inside isn't giving him the nourishment he needs, it sounds like you are in great hands :)
Keep us posted.
Kelly, with everything that's going on, how do you continue to look so great!!? Keeping you and baby boy Butler in our prayers. I'm glad their taking such good care of you in the hospital, you deserve it!! Hugs!
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