Charlie and I have been watching home movies; hours and hours of movies. He is hard at work burning them to DVD for us. There have been lots of laughs and even more tears. This video shows Brooklyn around 18 months old. It was right before regression of Rett Syndrome hit her hard core. This video shows her crawling, walking behind her push toy, and feeding herself a Skyline three way :)
This video brings up so many emotions for me....I feel proud for how hard she was working for each one of those steps and sad that she might not ever do any of these things again, ever. I feel angry that my sweet little girl has to go through all of this and blessed with the love, perseverance, and patience Brooklyn teaches me everyday. Yes...I am pretty much an emotional wreck right now. Man....I sure do love this little girl! Please continue to pray for a cure, I dream of a day that Brooklyn and I can walk into Skyline together and enjoy a three way :)
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Heartbreaking, I know. I have this picture of Martilee sitting on the couch with a graham cracker in her hand. It gets me every time I look at it. Rett Syndrome took away her ability to hold anything and her ability to eat. It also took away so much more. {Hugs}
Oh Kelly. I am so sorry for a hard day. Sending a hug and some strength your way. I love seeing Brooklyn's beautiful smile. Rett Syndrome just isn't fair.
Kelly, I know it is really hard but try not to dwell in the past--keep it present. Think about the giggles that you heard the other night when she and jackson were in his room alone. Think about the snuggles you get in the morning. Think about the joy she brings you now. Keep your head up. Love ya!
on a happy note, that video of her eating is hilarious! She was shovelling :)
Very cute vidoes! It can be hard to look back, for sure. Yet, she is growing into a very captivating, lovely young lady who has been given the gift of teaching.
OH Kelly, I am hugging you in my heart. Thank you for sharing you life with us, the good days and the bad. Your family is touching many lives. Lives are being changed, but it still hurts.
I am lifting you up in prayers tonight. Sleep well.
Hugs,
Kelly Carr
Kelly, that video just breaks my heart. I hate that Rett Syndrome has taken so much away from Brooklyn. I pray for the day that all of our kids can run and play together.
Love you three!
Ok Kelly, tears are streaming. These videos are so hard watch but wonderful at the same time! I hate Rett Syndrome too but Brookie certainly has your perseverance. You're just as amazing as she is! BOTH OF YOU are changing the world! I wish my arms could stretch from here to there (though i'd look awfully funny)!
Oh....my heart is breaking for you. I have a hard time watching our old home movies. I am however glad I caught those precious moments on video. I am hopeful there will be a cure one day, and our girls will be able to experience those milestones once again!!
She is SOO CUTE by the way!
How very lucky you are to have these images. She was adorable then and now. When I think of how much they (Avery and Brooklyn) have lost it breaks my heart but a smile from each lifts it back up again. Can't wait til the Butlers come to sunny Alabama.
See ya soon and Merry Merry Christmas to all your family
Hi Kelly, those videos are so cute, but remember Brooklyn achieves so much everyday. She has your spirit and determination. I pray for the cure each day. Hugs to you. xxxx
I'm sorry you are having a hard day. You, Brooklyn and your family are in my thoughts and prayers.
Hugs and to both you and Brooklyn! When the cure comes, we're flying out to see the Skyline and eat the three-way thing-y all together.. Sigh.
I had a really hard time watching that video Kelly. I have seen Brooklyn do all those things as well and watch Rett Syndrome take it all away. Sorry boy that really tugs at my heart too!
Videos are great you can remember those moments, try not to dwell on the past and concentrate on the future. Brooklyn is such a teacher to every one she comes in contact with. She has taught me and our family so much over the last three and half years. Hang in there!!!!
You are braver than I am. I still have everything on the camcoder tapes cause I cant bare to watch them. I tried once or twice. Watched her pick her hat up off the floor and put in on her head over and over. And crawl around the room chasing an ice cube. It's good you did this. Some people have no idea of our loss. You are so good and so brave the way you fight Kelly. Bless you.
Oh Kelly that has to be so hard for you to watch...Brooklyn has so much going for her and such a huge purpose here. Your family is such an inspiration! I am sorry you had a hard day. :(
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