Sunday, October 21, 2007
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My name is Brooklyn. I am six years old and I have Rett Syndrome. My mommy works with a wonderful Rett Syndrome organization called Girl Power 2 Cure. Be sure to check it out www.girlpower2cure.org I hope you enjoy this blog...it is filled with stories and pictures of our family's life with Rett Syndrome.
11 comments:
Hey man, is that the shirt you were supposed to send to me?????
love ya
You look awful cozy next to your Mommy!
Shannon (Noah)...
Oops....yep it is. Mommy totally forgot to mail it so I decided to try it on today. I look pretty cute though, right?!
While you do look ADORABLE, I know for a fact that you have A LOT of clothes (from my sisters). SO, seriously, my mommy thinks I would be pretty cute in that shirt too. We're still cool though.
Peace out,
Noah
P.S. Your Aunt Kristin said I could have it first!
awwwwwwwwwwwwwwwww!
Looks like you had a beautiful day! I'm sure it was nice after being away from home.
Hey Brooklyn (and mom and dad),
I'm so glad to hear that your trip to Houston went well. I have been praying for you. I have also been spreading the word about Rett syndrome. I feel that my meeting you was more than just chance. As a nurse in a large hospital, I will be looking for ways to increase awareness.
You are such a beautiful girl. I am so pleased that I had the chance to meet you.
Dan Newlun (Chicago Airport)
Hi from Grandpa and Margie,
What darling pictures. Grandpa has the picture of Momma and you sleeping the hammock on his desktop. He always has updated pictures of you on his computer.
We're having a fund raising event Nov. 11th at East Cobb Methodist Church to raise money for Rett Syndrome. The William Baker Festival Singers will perform and Margie will speak on Rett Syndrome and ask for donations. That's Grandpa and Margie's wedding anniversary. We hope to raise lots of money for Rett Syndrome research!
Love Grandpa and Margie
What a wonderful, relaxing day . . . there is nothing quite as nice as snuggling with mommy.
Aren't you two cute in the hammock?
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