Thursday, July 5, 2007

Rett Update

The 2cc's of Keppra seem to be working (at least for now.) She has adjusted very well to the increased dosage. We are all keeping a close watch but for seizures! (YEAH!!!)

Her teeth grinding has increased tremendously over the past week or so, from the research I have done it does not seem like there is much that can be done to stop this really. (We just have to keep and eye on her teeth in case there is damage done.)She has a gorgeous smile and we hope to keep it that way!

The crawling continues to slow down, she prefers to not crawl at all unless seriously motivated....the Wiggles continue to be her motivator of choice! She is going to be out of her mind THRILLED in August when we take her to the concert....she might just get up and walk to the stage!

Her walking is a very slow process, she will not move on her own at all, she does a pretty good job of keeping up if I am pushing the walker behind her. Over time I hope that her strength and mobility increases so that she can push her walker on her own and chase us all around.

She can still sit unassisted for any length of time and will stand in her walker or against the couch for quite awhile as well. This really is encouraging for us and will help her continue to build strength.

By the way....two nights in a row of sleeping through the night. WHOOOO HOOOOO! Mommy and Daddy are SO happy (and a little rested!)
I think that covers most of it for now......

1 comment:

Elijah, Adrielle, & Ezra Rhodus said...

I'm so glad to hear no more seizures for now. We will keep praying that her strength will continue to increase. She does have one of the most beautiful smiles we have ever seen! I'm so excited that she gets to see the wiggles in person! How awesome! She will be one excited lil' girl! Elijah and Adrie want to see you so bad! We need to plan a date and we will come up and visit :) We love you Brooklyn!