The Keppra that they have prescribed for her seizures seems to be helping a bit but she is SO sleepy that it has been hard to tell how effective it is really. Sometimes I feel that she is so tired that I can't tell if she is having a seizure for sure. I have talked to other mom's (thanks again Jennifer) and this is the normal reaction at first. We will keep an eye on her but so far I believe Brooklyn is on her way to being seizure free!!!
Monday, June 11, 2007
Rett Update
Posted by Brooklyn at 8:32 AM
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3 comments:
Hi this is Doris! Mom of Edda (3 - RS). Good to find you! I love the internet to bring us all together. Good luck with the medication, I'm crossing my fingers for you.
Hello. I'm Rebecca, my daughter Caitlyn with be 4 in August, and she also has Rett Syndrome. Brooklyn is beautiful! I hope the Keppra works for you. Caitlyn is on Zonegran, and we have been very lucky with that one! Great to find you!
We are keeping our fingers crossed!!!!
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