Wednesday, December 29, 2010

Making Peppermint Bark

I keep forgetting to post these pictures of Brooklyn and Grammy making peppermint bark....she loved it!!! Here she is beating up on the candy canes :) Busted...."testing" the white chocolate to make sure it tastes ok!

Mixing in the crushed candy canes...
Dumping it out!
Spreading it out on the pan to cool!
DONE! I think she was pretty proud of herself!
The hard part was waiting for it to cool to have a piece!

Tuesday, December 28, 2010

Crazy Pinzs

Kristin and I took the kids to Crazy Pinzs today for some glow bowling! The boys were great helping Brooklyn.








Jackson.....the big winner today!

Jordan getting ready to roll a STRIKE!!


No one wanted to take a break for a picture with mommy!





Monday, December 27, 2010

5 days left to help GP2C in 2010!

Katie is one of those young ladies that is an inspiration. She made 500 cupcakes to raise money for Rett Syndrome Research!!! I can't thank her enough! That is what Girl Power 2 Cure is all about. Girls helping girls! To read more or to make a year end donation to help us in our fight against Rett Syndrome click here!

Sunday, December 26, 2010

Aunt Kristin and Uncle Josh got Brooklyn this GREAT Barbie guitar! It can play songs on its own or any touch to the strings and it plays. Brookie LOVES it....and her cousins think it is a pretty cool toy too! (oh, and the pretty brown and pink heart blanket too!)

Brookie also received a new portable DVD from mommy....which BOTH kids (and Uncle Josh) seem to love. Along with a new Wiggles movie from Santa- which I thought we had them all but I was wrong!
Uncle Josh was showing Brooklyn how it is done :)

Friday, December 24, 2010

Mommy and Brooklyn before Christmas Eve service.

Wednesday, December 22, 2010

Brooklyn, Boston and I want to wish all of our friends and family a VERY Merry Christmas! I also want to thank all of you who faithfully read this blog and continue to show us so much love and support! It means the world to me. Please continue to pray for us as we look forward to 2011 and a year of lots of new beginnings!
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Monday, December 20, 2010

Brooklyn and Boston hanging out....I adore these two kiddos so much!



I know this is a little blurry but her face was just so sweet that I had to post it. You all are used to the "Rett hands" always moving anyway, right?!?!

Wednesday, December 15, 2010

Brooklyn was SO excited for school today. I guess after the long weekend and then a snow day, who wouldn't be. I hate to even tell her that Christmas break starts next week! Yep.....happy, happy, happy!

I told her we would get a picture of her matching red shoes :)

Sunday, December 12, 2010

Christmas Over the Years

2010 2009
2008
2007
2006
2005

I will be celebrating my sixth Christmas with my beautiful little Brookie Bean this year....wow....where does the time go? So...what is on our Christmas wish list this year??? Our cure for Rett Syndrome of course!! Rett Syndrome entered our world in 2007....forever changing our lives.

I want to thank everyone who has spent time in prayer over 2010 praying for treatments and a cure for Rett Syndrome......we truly are getting SO CLOSE!!! I also want to thank all of my friends and family who have financially supported our fight for a cure. I can't put into words how much that means to me that you are helping us take that next step!

If you or your company are still planning to make a charitable donation before the end of the year, I would love for your to consider Rett Syndrome and Girl Power 2 Cure. A donation can be made in Brooklyn's honor by clicking HERE.

Thank you ALL for your continued love and support of Brooklyn!

Saturday, December 11, 2010

Brooklyn's Christmas Program

Here is my angel during one of the group songs. Here is her "character poster" outside the theater

She was interviewed about the play :) (the older girls used her yes/no cards)
Brooklyn during the Dress rehearsal :)
Hanging out with Santa and Mrs. Claus after the show.
I could not have been more proud of her!!!

Friday, December 10, 2010

Here is a short clip of Brooklyn making her entrance at the Christmas program on Thursday. Of course I grabbed a memory card that was almost full so you do not get to see her entire performance which included her using her switch to say her speaking line. (I know WORST mom ever!!!)

Wednesday, December 8, 2010

Colors


Brooklyn going over her colors with Lauren and Sarah after school today :)

Tuesday, December 7, 2010

Sunshine in my soul

My friend and fellow Rett mommy Maren has an amazing blog that she keeps for her daughter Leah. Yesterday her post moved me to tears. I asked if it would be ok if I shared it here on my blog too. It is about a friend of hers that was teaching a Sunday school lesson and here is what the manual said:

"Tell about a girl named Heather Erickson. She had such a severe disease that she had very little control of her body. The only way she could communicate was by her family asking her questions. If the answer was “yes,” she would look directly at the speaker, and if the answer was “no,” she would blink. Heather and her family became very good at communicating this way. Heather’s special love for Jesus, in spite of her physical handicaps, was often expressed in her communications. One day her speech therapist asked Heather what her favorite song was. Heather became excited and was anxious for her therapist to know what song it was that she loved most. After three days of searching and asking questions, the song was finally identified. It was “There Is Sunshine in My Soul Today” (Hymns, no. 227).

"The last two lines, 'And Jesus listening can hear / The songs I cannot sing,' was Heather’s favorite part. Her therapist asked, “Heather, is that it? Is that what you like about the song? Is it what you want me to know? That Jesus is listening and He can hear the songs you cannot sing?” Heather lifted her head and looked her therapist straight in the eyes with excitement and yet almost relief evident on her face. The testimony had been borne. (Adapted from Bruce and Joyce Erickson, When Life Doesn’t Seem Fair [1995], pp. 49–55.)"


(to read Maren's entire post click HERE)

WOW - reading this was a reminder that Jesus DOES hear the songs that Brooklyn cannot sing and the words she cannot speak. HE knows her feelings on the days that I, as her mommy, can't. I can't wait for the day our cure is found when I can hear her songs too!

Friday, December 3, 2010

Counting to 20



In kindergarten they are working on counting to 20. We adapt the homework since Brookie can't write in her numbers. We made the numbers 1-20 on pieces of paper and then have her eye gaze out of four choices to fill in the next blank. She was FLYING through them so it took me to the number 12 before I realized that I should be recording her doing this!!! She is a little smarty pants!
You will notice that Grammy actually misses Brooklyn picking out the correct answer twice :) Proof that even those of us that are around her all the time can miss her gaze - she is QUICK when she knows the answer!!! I will try to start filming more of her homework to show you all how she is learning and showing us too
For you Rett moms watching this....our girls ARE IN THERE! You have to be patient and help them show you.

Thursday, December 2, 2010

Pink....the new green ;)

We want to say a HUGE thank you to Grace and Faith Smith who gave Brooklyn this BEAUTIFUL princess Christmas tree, complete with princess ornaments. Brooklyn had a few of her own pink ornaments to add to it and I think it is perfect!! what is not to love about princesses?

cutest tree skirt EVER!
I should mention Brooklyn's college friends help her decorate it :)
Brookie's room is officially ready for Christmas!!

Wednesday, December 1, 2010

After being a little "under the weather" for a couple of days, it was SO GOOD to see this smile back on her face again!!!